My Symptoms
 
Communication
  Humour

  The Past
  Being a child with Ataxia
  I remember when
  My love of Walking
  Scouting

  The Present
  Going shopping

  Around the House
  Cooking
  The Gym

  The Future
  Behind the wheel
  The charity
  Holidays
  What's left

 

 


 

 

                     

When I was diagnosed things were bad. A year later things were even worse but it all helped develop my understanding of what life was all about.

Don't think that I can preach on the A to Z of  how to live with Ataxia because I can't and I am not pretending its easy.  All I can do is tell you how I live with Ataxia and hope that some of what I say helps you and some of the problems I have, are familiar, to you perhaps.

Humour is something that helps us all get through the day.  If it was not there life would seem far too serious.

One of my biggest faults is laughing at my own jokes while I am trying tell them. As Tommy Cooper used to say I'm sorry I know the punch line.

 

 

 

                        me in garden

When I take a long time getting to the phone I tell the caller " I am sorry I took so long because I can't run as fast as I used to". This normally raises a laugh if the person calling, knows me.

At the end of the day its crucial that remain happy despite any setbacks. In order to live with Ataxia you have to avoid the things that stress you out. Look a little closer at the things you would rather not do and, if possible, ask somebody if they would mind doing them for you.  You may be pleasantly surprised at how much people will go out of there way to help you.

I do not mean give up doing things for yourself. Just that doing everything for yourself is not realistic if you have Ataxia.